Formerly CeilidhOnTheRun…

Living with Fibromyalgia

Living with fibromyalgia is as frustrating as it is painful. After working through the pain all week and not feeling up to anything at home in the evenings, my weekends are most often spent playing catch up on my household chores. But come Monday, when one should return to work feeling rested and ready to take on a new week, I am more exhausted than ever and often in greater pain.

Living with fibromyalgia

This weekend I finally managed to clean out my pantry. Not a huge task on the scale of physical demand, but one that required standing and raising my arms above my head a lot. My shoulders hate that motion. So today, I pay for it, waking in pain. With a typical fibromyalgia flare-up: muscle tension everywhere and a headache that just won’t subside. No matter what extra strength Tylenol and water I consume, hot shower and extra strength Voltaren I use… I find myself sitting half undressed in a lazyboy, overheating from the pain, with a magic bag wrapped around my neck & shoulders.

I know how it sounds when I call into work many Monday mornings saying I’ll be late. I know my staff and my supervisor begin questioning the validity of my condition. Most of the time people around me don’t even know what pain I am enduring. I tell those who do notice, that if they can actual tell that I am in pain, it has to be pretty bad, because the days that people think I’m doing just fine, inside I feel like I’m just barely coping. The fact is, I would be much better off with a part-time job, and even better off with work that I can do from home on a flexible schedule.

I think by speaking with other Fibro-sufferers, people would learn that my situation is not at all uncommon among those with fibromyalgia. There is nothing I wouldn’t give to be able to live day to day without pain, wake feeling rested and not feel fatigued all day long, and have a clear head to process thoughts with an ability to remain focused for more than 90 seconds. Today is one of those days. I don’t want your sympathy… Just a little compassion, instead of judgement. Patience,
instead of frustration. And maybe a few extra moments to process thoughts before giving a response…

We all live with challenges that others don’t know about. It’s time to start opening up and sharing, rather than assume these challenges somehow make us inferior or less than competent. What are your daily challenges that you keep hidden away?


Drop me a note in the comments below, or connect with me on Twitter @ceilidhontherun or email me at trish at trishblogs dot com!

I invite you to subscribe to my blog using one of the options available on my page (email, rss, Google Connect, like my page on Facebook, etc.)

If you enjoyed this post, please do like/share it. You can do so using the easy share button below

Alone versus lonely

Sun and ocean

Do you feel alone or lonely? Adults' lives are filled with dichotomies. The more wrenches that get thrown into life, the more contrasting views that seem to apply to the same situation(s). I am faced with one of the most common single parenting … [Continue reading]

If not now, then when?

Now Distant Thoughts

Have you ever wanted something/somewhere/someone so much, so bad... that you were willing to do almost anything to get it? No matter how counter-intuitive, no matter how hard it might seem... and it wasn't hard at all? Acting outside of our … [Continue reading]

Fear not

Fear less pursuit of passion

What is it they say? "The only thing to fear is fear itself"... Ironically, fear is one of the biggest causes of failure. Failing to live life to its fullest, failing to try new things, failing to pursue dreams, or to love, even failing at the … [Continue reading]

Protected: Top reasons I’m YOUR Brand Coordinator:

Ford Atlas Concept

This content is password protected. To view it please enter your password below: Password: … [Continue reading]

Leadership Notebook – Prompt #1

Leadership Notebook Prompt #1 What is leadership? I have been in a couple of scenarios where someone just stood out as a leader, whether or not they were officially assigned the role. In both cases the leader was so well connected with … [Continue reading]

Leaping for change


Today is Leap Day and I want talk about Leaping for change... Most people accept change with a great deal of resistance. Fear of the uncertainty is a big obstacle. In my experience it is always best to leap. I like to take big leaps, but I also … [Continue reading]

Blogging for recovery (mental health)…

A picture of mental health. Photo credit: Debbie Roberts

The road to mental health recovery is a long, challenging one. There are curves and dips, mountains and valleys, switchbacks and stalls. Often moving so slowly we feel as if we're in reverse. Occasionally we truly are. Sometimes the entire process … [Continue reading]

Coming home

Yarmouth Courthouse from Frost Park

People ask me where is home - where I'm from - and I call myself a Yarmouth transplant. I moved here in middle school, and left after I marrying a local. My dad was a member of Royal Canadian Mounted Police and both of my grandfathers were in the Air … [Continue reading]

Yarmouth Court House & Jail House


Yarmouth Court House & Jail House             … [Continue reading]